03.30
I’ve gotten migraines since ‘92. my first time i had no pain at all, but lost vision from my left eye (it’s almost always my left eye) and was nauseated, it scared me to death, i thought i was going blind at 19 for no apparent reason, lol. anyway, i’ve been thru so many tests and meds, diets, charting, the whole thing. i’ve still not found anything to help. what frustrates me most to this day is so many people thinking this is such a small problem, some people even doubting my pain! even thinking i’m just drug-seeking! acting like for every small headache i’m running to the e.r. for a shot. that’s so not the case, as i’m sure all of you already know. i was in an abusive realtionship for 10 years (those concussions probably didn’t help) and now i have my ex using this against me in a custody case. even the man i’m with now, who is usually a good man, doubts my pain. of course he heard it from my ex who put that in his head. the first couple migraines i went to the e.r. for since moving here to KY, my new man went with me, and sat with me the whole time, hours! now, since my ex telling him it’s a drug seeking or addition problem, now my new guy is hesitant to take me to the e.r. and he doesn’t even like me taking tylenol. i’m so frustrated. last night i suffered through the pain, vomiting, vision loss, etc. i almost feel bad trying to seek treatment anymore for fear that i’ll be seen as that drug-seeking hypocondriac. any advice or ideas is apppreciated. i’m sure i’ll be on this site with some regularity, and i’m looking forward to meeting all of you.
Maybe you can get your boyfriend some literature on migraines so he can understand better what you are going through, that you didn’t make this up! Also there’s a form I saw you can download to take to the ER so they know your migraine history and don’t think you’re just drug-seeking - I’m going to look for it and post the link when I find it.
Good luck!
There’s a good book you should get your new man to help him understand migraine by Oliver Sacks called Migraine. He’s a neuroscientist I believe and writes on subjects from the perspective of the afflicted. He doesn’t suffer from migraine himself. I met a naturopathic Doctor who said it was the only way she could try to understand what her patients were suffering with. She was also a great help to me in managin my migraines. Maybe thats a route you should try as these
people are saying you’re after the drugs. I was in a marriage where I was blamed for “ruining everything” with my headaches. My ex would scream at me when I had a headache. (of course there were lots of other issues there as well…..) I’m pretty much headache free now and have stopped all my medication and take only some natural supplements. I went to dozens of doctors and none of them helped. The abortive medications - zomig in particular helped a littel but the side effects were pretty tough to deal with. The daily preventatives I took made me lose my memory, appetite, libido, dreams, and a bunch of other weird side effects./ I don’t take any of that crap anymore and am pretty much without headaches for 2 months now after 27 years with no more than a few days break between migraines.
Good luck with your search for relief, my other posts have a web address of the ND I met - completely by accident that changed my life. Just search the group for my posts and if you can’t find them ask on here and I’ll send you the info. Take care!